Prevalence of Upper Limb Deficiencies by County, New Mexico, Non-standard Period
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Prevalence of Upper Limb Deficiencies by County, New Mexico, Non-standard Period
Why Is This Important?
Birth defects pose a significant public health problem. One in 33 babies is born with a structural birth defect in the United States. Birth defects are a leading cause of infant mortality and responsible for considerable morbidity with enormous economic and social costs. Babies and children with limb deficiencies will face various issues and difficulties, but the extent of these will depend on the location and size of the deficiency. Some potential difficulties and problems include: -Difficulties with normal development such as motor skills -Needing assistance with daily activities such as self-care -Limitations with certain movements, sports, or activities -Potential emotional and social issues because of physical appearance Specific treatment for limb defects will be determined by the child's doctor, based on things like the child's age, the extent and type of defect, and the child's tolerance for certain medications, procedures, and therapies.
Definition
An upper limb deficiency occurs when a part of or the entire arm (upper limb) of a fetus fails to form completely during pregnancy. The limb is reduced from its normal size or is missing. Prevalence of upper limb deficiencies is the number of live-born infants with an upper limb deficiency per 10,000 live-born infants. (Live-born infants are the infants born with any evidence of life). New Mexico live-born infants with upper limb deficiencies, 2006-2011. The following International Classification of Diseases, 9th Revision, Clinical Modification (ICD-9-CM) codes were used to identify upper limb deficiencies: 755.20 - 755.29. In 1987, CDC put forth a set of 6 digit codes (the sixth digit provides greater specificity for diagnosis) based on the British Pediatric Association Classification of Diseases and the ICD-9-CM. If CDC/BPA codes are present, the following were used to identify upper limb deficiencies: 755.200 - 740.290.
Data Notes
Data for combined years 2006-2011.Data Sources
- Birth Defects Prevention and Surveillance System (BDPASS), New Mexico Department of Health.
- Birth Certificate Data, Bureau of Vital Records and Health Statistics (BVRHS), Epidemiology and Response Division, New Mexico Department of Health.
(https://www.nmhealth.org/about/erd/bvrhs/vrp/)
How the Measure is Calculated
Numerator:
Number of live-born infants with an upper limb deficiency.Denominator:
Number of live-born infants.
Data Issues
Birth Defects Prevention and Surveillance System (BDPASS)
Birth defects are reported on the birth certificates, which are provided for all births occurring in-state as well as births to NM resident mothers who gave birth out-of-state. Some birth defects (Hypoplastic Left Heart Syndrome, Tetralogy of Fallot, Transposition of Great Arteries, Hypospadias, Lower and Upper Limb Deficiencies, and Trisomy 21) were not reported on birth certificates until 2004.
Birth Certificate Data
Birth certificate information is submitted electronically by hospital medical records staff who use standard mother and facility worksheets and medical charts to collect the needed information. Training of hospital staff is provided by the Bureau of Vital Records and Health Statistics (BVRHS). The birth certificate information is reviewed by BVRHS for completeness and consistency with state law and NMDOH and national guidelines. BVRHS will contact hospital staff for clarification of missing, inconsistent or incorrect entries. CDC's National Center for Health Statistics provides feedback to BVRHS on data quality and the NMDOH provides feedback to the hospitals to improve data quality and training.